We want to highlight our members on our website! Here are some ways that you can contribute: News: Send us news of your advocacy (including photos and links) Advocate submissions: These can be articles or videos that you’ve created related to advocacy that you’d like to share with our membership. We want these to be…
The City of Austin, Texas proclaimed March 1, the first day of Kidney Cancer Awareness Month, to be “Kidney Cancer Awareness Day” from 2025 onward. KCA Ambassador and patient advocate Annamaria Scaccia requested the proclamation. “I’m grateful that Austin has recognized March 1 — the start of Kidney Cancer Awareness Month — as Kidney Cancer Awareness…
Kelly Shanahan, MD, co-chair of ACE’s Membership Committee has been named president of METAvivor, We’re thrilled for Kelly and the METAvivor community, but we’re sorry that she’ll have to step down from her position of our membership committee. Congratulations on your appointment!
The Cancer Support Community is conducting a study to understand the impact of cancer and cancer treatment on key physical activities. Advocates for Collaborative Education is helping to recruit for this important study. To participate in this study, you must: Visit www.surveycsc.org/ACE to learn more and to assess your eligibility. You will first be asked…
Several of our Advocate Collaborative members have helped to design an anonymous survey on treatment choices for individuals with HER2+ metastatic breast cancer, regardless of hormone-receptor status, in the US. This study is being conducted by Drs. Adami and Papautsky at the University of Illinois Chicago and patient advocate, and Advocate Collaborative member, Martha Carlson….
Following nearly four years of collaboration, the Advocate Collaborative has made the decision to incorporate as a non-profit organization. This decision was made after careful consideration for the pros and cons of what it means to incorporate and the challenges of seeking support in a challenging advocacy environment. But the facts were instructive. We are…
A huge thank you to all who contributed their experiences and to all who shared with their networks. We shared data from the breast cancer subset of our first advocate-driven research at San Antonio Breast Cancer Symposium last week! Looking forward to publishing in other forums and to sharing the full all-cancers dataset in 2024. #SABCS23.