Open-Access Publications from ACE Members
Here are a variety of open-access articles and videos by ACE Members that focus on research advocacy.
- How Patient Advocates Help Cancer Research A video interview with Patty Spears (Cancer.Net)
- So you want to serve on a scientific review panel? Bob Riter, Monica Vakiner, and Carole Baas (Cancer Today, AACR)
- Academic articles that provide background and support for involving advocates:
- Patient Engagement in Cancer Research from the Patient Perspective Patricia A. Spears (Future Oncology). 2021.
- Advocate involvement in Clinical Trials: Lessons from the Patient-Centric I-SPY2 Breast Cancer Trial Jane Perlmutter, Susie Brain et al. (European Society of Medicine Archives). 2023.
- Cancer Research Advocacy: Past, Present and Future Jane Perlmutter, Shannan K. Bell, and Gwen Darian (Cancer Research). 2013.
- Transforming research: engaging patient advocates at all stages of cancer research AnneMarie Ciccarella, Alicia C. Staley, and Aime T. Franco (Annals of Translational Medicine). 2018.
- Promoting Scientist–Advocate Collaborations in Cancer Research: Why and How Jeannine M. Salamone, Wanda Lucas, Shelley B. Brundage, Jamie N. Holloway, Sherri M. Stahl, Nora E. Carbine, Margery London, Naomi Greenwood, Rosa Goyes, Deborah Charles Chisholm, Erin Price, Roberta Carlin, Susan Winarsky, Kirsten B. Baker, Julia Maues and Ayesha N. Shajahan-Haq (Cancer Research). 2018.
- Connecting Students with Patients and Survivors to Enhance Cancer Research Training Robert Riter and Robert Weiss (Cancer Research). 2019)
- Improving the Odds Together: a framework for breast cancer research scientists to include patient advocates in their research Hillary Stires, Igor Bado, Thelma Brown, et al. npj Breast Cancer
- Roadmap to engagement: Bringing patient partners into cancer research and beyond Kimminau, K., Jernigan, C., Krebill, H., Douglas, S., Peltzer, J., Hamilton-Reeves, J., . . . Jensen, R. Journal of Clinical and Translational Science. (2023).