Advocates can help shape cancer research
Advocates often work with cancer researchers in the development and implementation of their research. Other advocates review and help prioritize research proposals through programs such as the Congressionally Directed Research Medical Research Program. The focus is providing the patient’s perspective – the learned experience.
Researchers are generally quite receptive to emails and calls from advocates who are interested in their work. If you read a study that interests you, reach out to the researcher. Many researcher-advocate collaborations have started in just this way.
Training and Opportunities
Here are some of the most established programs focused on cancer research advocacy. Many site-specific cancer organizations offer some training and connection with researchers as well.
For all or multiple cancers
- Advocates for Collaborative Education (ACE)
- Scientist – Survivor Program (American Association for Cancer Research)
- GRASP: Guiding Researchers and Advocates to Scientific Partnerships
- Progress for Patients (Friends of Cancer Research)
- FORCE Research Advocate Program (Hereditary Cancers)
For specific cancers
Breast cancer
- Project LEAD (National Breast Cancer Coalition)
- Susan G. Komen Advocates in Science
- Alamo Breast Cancer Symposium Advocate Program
- Young Survival Coalition
- Theresa’s Research Foundation (Metastatic Breast Cancer)
- Lobular Breast Cancer Alliance
Lung
- STARS (International Association for the Study of Lung Cancer)
Colorectal